Category Archives: Daily Living

Camping Trip

Another camping trip in the Airstream. Proving—again— that it is indeed possible to go camping on PD.  Yes, it is more work. You have to make absolutely, positively, without-a-doubt certain you don’t for get something. Plus, there is the work … Continue reading

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Camping! Again.

We went on another camping trip 6/27 and 6/28. This time venturing further–four hours away–to Eagle Nest Lake in northern New Mexico. It wasn’t the best experience but not because of the dialysis. Because we’re still trying to stick with … Continue reading

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Normal…at Last

Posts have gotten pretty infrequent because, well, things are “normal”.  As normal as things can be with ESRD.  Our wonderful PD nurse had told us when Chuck first started dialysis that it would take two months before he would really … Continue reading

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Camping Out

A little over 3 months now and I feel good but I am still resisting the routine of it.  I guess I just have to give in to the control of it all but I am thankful to be alive.  … Continue reading

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Lugging a 33 Pound Drain Bag and Other Aspects of Daily Life

As I wrote when we first started this blog—and indeed the reason we started this blog—was because we wanted to know what life would be like. What happens every day? The Baxter unicorns and glitter story sure didn’t seem like … Continue reading

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PTSD and Sleep

It certainly has been a wild ride the last week or so.  Chuck posted a few days ago about the sleep and PTSD issue. It was actually a very serious event. Somehow, in his half sleep/half hallucination state he got … Continue reading

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Settling In…?

Well, I guess I have settled in to the idea of all this dialysis stuff.  I have found that my day starts before 7am with the end of therapy.  I don’t feel like I need to stand babysitter over this … Continue reading

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Bumbling Toward Normal….whatever that is

Sleep still continues to be the big issue even though the 12 foot extension to Chuck’s 10 foot “tether” means he has more room to pace, and, most importantly that he can get to the toilet. Something troubling that has … Continue reading

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Moving Up to Extraneal

Chuck’s  response to standard PD therapy hasn’t been what the PD nurse (Joyce) and PD renal doctor think is acceptable. He still had lots of edema in his legs and his total UF (the amount of bad stuff pulled in … Continue reading

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A Little Bit of Sleep is Better Than None

I am starting to get SOME sleep and it is making a tremendous difference in my days.  Yesterday I spent the whole morning in a chair, asleep.  Which isn’t that good but at night I am getting comfortable sleeping with … Continue reading

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Looking Forward to 8 AM

I look forward to each morning.  Right now I am spending more time at night, awake!  I like to keep an eye on the Baxter machine and its display.  I usually get my laptop and sit up during the night, … Continue reading

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Getting WORSE on CAPD

[Because the VA wouldn’t order a cycler until Chuck was discharged from the hospital] Since Chuck got home from the hospital (again) on March 5 we have been struggling with CAPD.  It’s almost like a full time job and it’s … Continue reading

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Trying to be “Normal”

One of the things Chuck and I have enjoyed is a ‘date night’ on Fridays where we go to a movie and out to eat. It’s been more difficult recently because of Chuck’s fatigue. Some nights we’ve just gone out … Continue reading

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Wake-Up Call

It’s time to make sure that things are all in order.  In 5 more days I will be admitted in the hospital to have my catheter installed.  Wouldn’t be so bad but because I am on Coumadin I have to … Continue reading

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Living with IT!

I’m tired all day long.  It is hard to get motivated to even get out of my chair just for a glass of water.  If I sit still long enough I will doze off and start snoring…How embarrassing!  When this … Continue reading

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Sleep Problems

There’s a whole laundry list of symptoms and conditions related to ESRD that I found on Medline Plus (http://www.nlm.nih.gov/medlineplus/ency/article/000500.htm).  Before we knew the seriousness of Chuck’s renal condition, we were mystified by some of the physical things he experienced before … Continue reading

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